Thank you all so much for your kind words. Don't worry- I will get 10 opinions if necessary and will travel to Timbukto if I hear of a treatment there. A hysterectomy is a last resort.
I was diagnosed during surgery for endometriosis. My doctor said he could pretty much tell just by looking at my uterus that adenomyosis was pretty likely. Diagnosis with an MRI can work in some cases but will probably not in my case (I forget why- I was so shocked and it is tough to remember exactly what he said).
My main symptom is abdominal pain- severe, disabling abdominal pain. There is a medication called Lupron that I can take (the one with the horrible side effects). If it works then it is 99% confirmation of adenomyosis. If that is the case and no other non-hysterectomy treatment works I would have to have it done. The pain right now is constant and is so bad and while I am devastated at the thought of never carrying a child I really, really need to get better and stop hurting.
I believe freezing my eggs IS an option. I asked my doctor that yesterday and he said it was and that we could discuss it and other options later if it came to that.
I have another appointment with him in 2 weeks so I will learn more them. I am still recovering from the surgery and am in a lot of physical pain on top of the emotional pain. I also know of a world-renowned GYN here in Atlanta. I had seen him for the endo but ended up going with the other doctor as neither were covered by insurance and the the famous one was REALLY expensive. Will have to bite the bullet on that one now, I think.
My FH is having a tough time dealing with this, too. He would probably not mind it if we never had kids but he knows how much I want them someday and he knows he would be happy once we had them. We even picked out names- Jack Douglas and Madison. He took a personal day today partly to be with me and partly because he is just so sad himself. I don't think he would change his mind about marrying me if we can't have kids naturally but I am afraid other people may suggest it. Could anyone be so callous?
My mind is obviously all over the place. I will let you all know if I make any progress.
